Sarcoid Connection

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THE REFERENCE LIBRARY
Who, What, and Where

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Note: Comments, Changes, Additions, Deletions, Dead Links, etc. about this page are always welcomed


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Books and Other Publications

  • Coping with Prednisone and Other Cortisone-Related Medicines, a book by E. Zukerman and J. Inglefinger, ISBN 0312155026, 176 pages. Published 8/97, St. Martin's Press, $21.95. Paperback edition, ISBN 0312195702, 208 pages, published 10/98.

  • "The Internet and the Changing Roles of Doctors, Patients, and Families," an article by Patrick J. Pemberton and Jack Goldblatt, printed in the Medical Journal of Australia, 1998; 169: 594-595. This article embraces the concept of informed patients and use of their websurfing skills to enhance their medical care through an increasing partnership between physician and patient.

  • "LungNet - Learn About Lung Health", has a fairly long list of fact sheets about such topics as "Sarcoidosis," "Chronic Cough in Adults," "Lung Function Tests," "Bronchoscopy," and "Corticosteroid Therapy in Respiratory Disorders."

  • "Your Guide to Sarcoidosis," an informational publication from the National Institutes of Health. For ordering information, please call (301) 496-4143 or use this Contact link

  • "Sarcoidosis," an article prepared by the American Autoimmune Related Diseases Association, Inc., Michigan National Bank Building, 15475 Gratiot Avenue, Detroit MI 48205. Phone: (313) 371-8600. Contact them for a reprint.

  • "Sarcoidosis," an informational article prepared by the Illinois Department of Public Health for Healthbeat.

  • "Sarcoidosis," an article by Lee S. Newman, MD; Cecile S. Rose, MD, MPH; and Lisa A. Maier, MD (NJMRC). Published in the New England Journal of Medicine, Volume 336, Number 17, April 24, 1997. Reprints available from the NEJM, but cost $10 each plus S&H.

  • "Sarcoidosis," a publication by the World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) that may be available only to members or professionals. I have been unable to obtain more information about it.

  • "Sarcoidosis: A Primary Care Review," by Mark H. Belfer, D.O. and R. Wayne Stevens, M.D., published in the December 1998 issue of the American Family Physician. An informational article about sarcoidosis written in language for the layman. Includes a patient handout, "You Have Sarcoidosis, What Does This Mean to You?"

  • "Sarcoidosis, Concise Review for Primary-Care Physicians,"an article by Richard A. DeRemee, M.D., 1995. Send reprint request to Dr. R.A. DeRemee, Division of Pulmonary and Critical Care Medicine, Mayo Clinic Rochester, 200 First Street SW, Rochester MN 55905 (USA)

  • "Sarcoidosis for the Patient," an informational article by D.Geraint James (WASOG), modified by Norman T. Soskel, M.D. (SRI).
    Special Note: Information about members of WASOG and other useful addresses at end of article.

  • Sarcoidosis and Other Granulomatous Disorders, by D. Geraint James, President of WASOG, ISBN 0824791266, 859 pages. Published 1994, Marcel Dekker Inc, $195.00.
    Special Note: This book may be expensive but is very thorough and contains chapters by various specialists in sarcoidosis.

  • Sarcoidosis Resource Guide and Directory, by Sandra Conroy, President NSRC, ISBN 0963122258. Published in 1992 by PC Publications for $19.95.

  • "Should Patients Have Access to Their Medical Records?" by Meredith Carter, printed in the Medical Journal of Australia, 1998; 169: 596-597. An article outlining the benefits of patients having access to their own medical records, a right which does not presently exist in much of Australia with regard to the private medical sector.

  • "Understanding Sarcoidosis -- Information for Patients," an informational fact sheet for patients of Dr. Roger K. A. Allen, Australian sarcoidosis specialist in Brisbane, Queensland. Includes list and description of tests performed to determine diagnosis of sarcoidosis.

Newsletters:

  • In Focus -- Contact the American Autoimmune Related Diseases Association, Michigan National Bank Building, 15475 Gratiot Avenue, Detroit MI 48205 for information about subscribing.
  • LungNet National News -- Contact the Australian Lung Foundation (ALF) in Australia at 1-800-654-301 to be placed on the mailing list for this quarterly newsletter.
  • Sarcoidosis Community Newsletter -- Online newsletter at the National Sarcoidosis Resource Center (NSRC) website.
  • Sarcoidosis Networking -- Contact the Sarcoid Networking Association, 13925 80th Street East, Puyallup WA 98372-3714 for information about this bi-monthly newsletter.
  • The Sarcoid Byte Newsletter -- Online newsletter at the Sarcoidosis Worldwide Support Group (SWSG) website.

NOTE: If anyone wants to have a copy of any articles listed, does not have access to a printer and/or cannot find the article in the library, please feel free to contact me and I will send you a copy.

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Organizations

  • American Lung Association (ALA) (national headquarters), 1740 Broadway, New York NY 10019-4374 USA, phone: (212) 315-8700 or 1-800-LUNG-USA for information and regional office in your area


  • American Autoimmune Related Diseases Association, Inc. (AARDA), Michigan National Bank Building, 15475 Gratiot Avenue, Detroit MI 48205 USA, phone: (313) 371-8600, fax: (313) 371-6002


  • Australian Lung Foundation (ALF), Level 3, 454 Upper Edward Street, Spring Hill Q 4000 Australia


  • National Heart, Lung, and Blood Institute, Division of Lung Diseases, 2 Rockledge Center, 6701 Rockledge Drive, MSC 7952, Suite 10018, Bethesda MD 20892-7952 USA. Special Note: This organization can provide a list of U.S. scientists studying sarcoidosis or physicians specializing in the disease.


  • National Institute of Allergy and Infectious Diseases, 9000 Rockville Pike Building 31, Room 7A32, Bethesda MD 20892 (USA)


  • Sarcoidosis Association (UK), Free Helpline in UK: 0800 950 0125.


  • Sarcoidosis Center, e-mail Dr. Norman T. Soskel at: soskelnt@sarcoidcenter.com.


  • Sarcoidosis Family Aid and Medical Research Foundation, (Geneva Ashley, President) 460A Central Avenue, East Orange NJ 07018 (USA), phone: (201) 399-3644 or 1-800-203-6429.


  • Sarcoidosis Research Institute (SRI), 3475 Central Avenue, Memphis, TN 38111 USA, phone: (901) 774-7294, fax: (901) 766-6951.


  • World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) (President and American members only are listed here, no information on Australian members found)

  • D. Geraint James, President of WASOG, Sarcoidosis Clinic, Royal Free Hospital, Pond Street, Hampstead, London NW3 England
  • Om P. Sharma, Vice President of WASOG, University of Southern California Medical Center, 1200 N State Street, GNH-11900, Los Angeles CA 90033, USA, phone: (213) 226-7902 or (213) 226-7923, fax: (213) 226-2738. Died: August 2012.
  • Robert P. Baughman, M.D., University of Cincinnati Medical Center, P.O. Box 670564, Cincinnati OH 45267-0564 USA, phone: (513) 558-0347.
  • Richard A. DeRemee, Division of Pulmonary and Critical Care Medicine, Mayo Clinic Rochester, 200 First Street SW, Rochester MN 55905 (USA).
  • David R. Moller, M.D., Associate Professor of Medicine, Director of Sarcoidosis Clinic, Johns Hopkins University Sarcoidosis Clinic, 5501 Hopkins Bayview Circle, Baltimore MD 21224 USA, phone: (410) 550-7753
  • Lee S. Newman, M.D., Department of Medicine, National Jewish Medical and Research Center, 1400 Jackson Street, Room G-010, Denver Co 80206 USA).
  • Alvin Teirstein, M.D., Division of Pulmonary and Critical Care Medicine, The Mount Sinai Medical Center, Box 1232 One Gustave L. Levy Place, New York NY 10029 (USA), phone: (212) 241-5900.
  • Carol Johns, M.D., Associate Professor of Medicine, Johns Hopkins University Sarcoidosis Clinic, 5501 Hopkins Bayview Circle, 4B72, Baltimore MD 21224 (USA), phone: (410) 550-7753
  • H. Reynolds, Hershey PA (USA)
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Hospitals and Doctors

  • Allen, Roger K.A., M.D., Thoracic Physician, St. Andrews Place Medical Center, Suite 299, 33 North Street, Spring Hill QLD 4000 (AU). Phone: (07) 3839-8606. Fax: (07) 3831-0325.

  • Beth Israel Hospital, Boston, MA (USA)

    Steven Weinberger, M.D., Pulmonary and Critical Care Division Beth Israel Hospital, 330 Brookline Avenue, Boston MA 02215, phone: (617) 667-5494

  • Hospital of the University of Pennsylvania Pulmonary Division, Philadelphia PA (USA)

    Milton Rossman, M.D., Hospital of the University of Pennsylvania Pulmonary Division, 3400 Spruce Street 814 E Gates Building, Philadelphia PA 19104, phone: (215) 662-6805 or (215) 662-6479.

  • Hospitals, Best (Respiratory/Pulmonary Disease) As listed by U.S. News, the top 42 hospitals in the U.S. for patients with respiratory/pulmonary diseases.

  • Johns Hopkins University (Sarcoidosis Clinic), Baltimore MD (USA)

    David R. Moller, M.D., Associate Professor of Medicine, Director of Sarcoidosis Clinic, Johns Hopkins University Sarcoidosis Clinic, 5501 Hopkins Bayview Circle, Baltimore MD 21224, phone: (410) 550-7753.

    Carol Johns, M.D., Associate Professor of Medicine, Johns Hopkins University Sarcoidosis Clinic, 5501 Hopkins Bayview Circle, 4B72, Baltimore MD 21224, phone: (410) 550-7753.

  • Mayo Clinic, Rochester MN (USA)

    Douglas Gracey, M.D., Thoracic Diseases and Internal Medicine, Mayo Clinic, 200 First Street SW, Rochester MN 55905, phone: (507) 284-2511.

  • Medical University of South Carolina, Charleston SC (USA)

    Marc A. Judson, M.D., associate professor of medicine in the Pulmonary and Critical Care Division; Medical Director, MUSC Sarcoidosis Center, 96 Jonathan Lucas St., CSB 812, Box 250623, Charleston SC, 29425, phone: (843)792-3162, e-mail: judsonma@musc.edu.

  • Mount Sinai Medical Center, New York NY (USA)

    Alvin Teirstein, M.D., Division of Pulmonary and Critical Care Medicine, The Mount Sinai Medical Center, Box 1232 One Gustave L. Levy Place, New York NY 10029, phone: (212) 241-5900.

  • National Jewish Medical and Research Center, 1400 Jackson Street, Denver CO 80206 (USA), phone: (303) 388-4461. For information call the LungLine: 1-800-222-LUNG (5864).

    Lee S. Newman, M.D., Department of Medicine, National Jewish Medical and Research Center, 1400 Jackson Street, Room G-010, Denver Co 80206.

  • St. Francis Hospital, Memphis TN (USA)

    Norman T. Soskel, MD, FACP, FCCP (Pulmonary, Critical Care, and Internal Medicine), Loewenburg Building - Suite 501, 6005 Park Avenue, Memphis TN 38119, phone: (901) 761-5877, fax: (901) 761-2280.

  • St. Michael's Medical Center (Sarcoidosis Clinic), 268 Dr. Martin Luther King Boulevard, Newark NJ 07102 (USA) phone: (201) 877-5493.

    Richard A. Miller, M.D., F.C.C.P., Chief of Pulmonary Division.

  • St. Vincent's Medical Center, Staten Island NY (USA)

    John Addrizzo, M.D., F.C.C.P., Director of Environmental Medicine, 11 Ralph Place, Staten Island NY 10304, phone: (718) 981-8880, fax: (718) 981-8891.

  • University of Southern California Medical Center, Los Angeles CA (USA)

    Om P. Sharma, 1200 North State Street, Los Angeles CA 90033, phone: (213) 226-7923. Died: August 2012.

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Support Groups and Other Self-Help Information

  • LungNet (AU) -- Australian Lung Foundation, Level 3, 454 Upper Edward Street, Spring Hill Q 4000 Australia. Phone: 1-800-654-301 within Australia. E-mail at alfnat@ozmail.com.au


  • Mt. Sinai Sarcoidosis Support Group (USA) (Chairpersons: Barbara Freeman and Phyllis Lake), One Gustave L. Levy Place, Box 1232, New York NY 10029 (USA), phone: (212) 241-8733.


  • MUSC Sarcoidosis Center (USA), Marc A. Judson, M.D., Medical Director, 96 Jonathan Lucas St., CSB 812, Box 250623, Charleston SC, 29425, phone: (843)792-3162.


  • National Sarcoidosis Resource Center (USA), P.O. Box 1593, Piscataway NJ 08855-1593, phone: (908) 699-0733, fax: (908) 699-0882.
    Special Note: Check out the Sarcoidosis Awareness ribbons and buttons you can purchase here.


  • Sarcoid Connection (USA), c/o Chris Townsend, Woodpecker Ridge, 1380 Main Road, Westport Island ME 04578 USA. Phone: (207) 882-7099. Support via Internet chat, e-mail, postal service mail, telephone calls, and support group meetings. E-mail Chris Townsend at cmtown@excite.com


  • Sarcoidosis Center (USA), 3475 Central Avenue, Memphis TN 38111, phone: (901) 774-7294, fax: (901) 766-6951 - Provides information about sarcoidosis for patients/physicians, and assistance in establishing support groups in a structured fashion. The center has organized the Sarcoidosis Support Group, which held its first official meeting on July 18, 2000.


  • Sarcoidosis Networking Association (USA), 13925 80th Street East, Puyallup WA 98372-3714.
    Special Note: This organization is mainly for use by WA state residents, but may provide information to others who inquire.


  • Sarcoidosis Worldwide Support Group (USA) - Internet-based support group, E-mail at JanM424@aol.com


  • Uveitis and Other Eye Conditions (USA) - Internet-based support group that communicates via a Yahoo!Club by the same name. E-mail Mambo (M. Angela Mauermann) at crystal_rose24@yahoo.com or milwauttowa@netzero.net

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Internet Links (Organizations, hospitals/doctors, bookstores, sources of sarcoidosis information)

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Questions and comments about this Web site and/or sarcoidosis are always welcome.
You may either send an E-mail message or sign my guestbook.

Email to:
cmtown@excite.com

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Compiled by Chris Townsend, Sarcoid Connection
cmtown@excite.com
Last modified on October 24, 2012