NOTE: I have listed a number of fibromyalgia organizations, a couple that
are closely related, and a few dealing with chronic pain and headaches. After each listing I have included some
of the features of the organization as I know them.
National Fibromyalgia Research Association
(NFRA), P.O. Box 500, Salem OR 97302 -- The NFRA is an non-profit FMS activist
organization involved in research, public awareness, physician education, patient education, political lobbying.
Features: Web site, awareness pin, FMS information, diagnostic criteria.
Fibromyalgia Network, P.O. Box 31750,
Tucson AZ 85751, phone: (800) 853-2929 or (520) 290-5508 -- The Fibromyalgia Network provides educational
materials on fibromyalgia and chronic fatigue syndrome.
Features: Web site, information, seminar info, newsletter.
The American Fibromyalgia Syndrome Association
(AFSA), 6380 East Tanque Verde - Suite D, Tucson AZ 85715, phone: (520) 733-1570 --
The AFSA is a non-profit organization dedicated to research, education, and patient advocacy
for those with fibromyalgia and chronic fatigue syndrome. The emphasis is on research.
Features: Web site, membership, seminar info, educational materials.
Fibromyalgia Alliance of America, P.O. Box
21990, Columbus OH 43221-0990, phone: (888) 717-6711 or (614) 457-4222, fax: (614) 457-2729 --
FMAA is a non-profit organization that is an alliance of individuals representing themselves
and/or others living with fibromyalgia.
Features: Web site, information, membership, newsletter.
National Fibromyalgia Association,
Lynne Matallana - Director, 2200 Glassell Street, Suite "A", Orange, CA 92865,
Phone: (714) 921-0150, Fax: (714) 921-6920, Email: NFA@fmaware.org. -- The National
Fibromyalgia Association (previously known as the National Fibromyalgia Awareness Campaign)
is a [501(c) 3] non-profit organization whose mission is to develop & execute programs dedicated
to improving the quality of life for people with FM by increasing the awareness of the public,
media, government & medical community.
Features: Web site, information, disability
information, newsletter, membership, Awareness Day info and t-shirts.
USA Fibromyalgia Association, Box 1483, Dublin OH 43017, phone: (614) 851-9177
or (614) 675-1152.
The Oregon Fibromyalgia Foundation
, 1221 SW Yamhill - Suite 303, Portland OR 97205-2110.
Features: Web site, information, disability info.
Fibromyalgia Association of Florida, Inc., P.O. Box 14848, Gainesville FL 32604,
phone: (904) 373-6865.
Inland Northwest Fibromyalgia/Chronic Fatigue Association, 933 West 3rd Avenue - Suite 211,
Spokane WA 99201, phone (509) 838-3001.
British Columbia Fibromyalgia Society
, P.O. Box 42504,105 1005 Columbia Street, New Westminster BC Canada V3M 6H5, phone:
(604) 540-0488, fax: (604) 520-0481 -- The British Columbia Fibromyalgia Society is a non-profit
organization dedicated to the belief that people with fibromyalgia are entitled to support,
care, and effective treatment, and that both support services and research are of vital
Features: Web site, information, newsletter, membership, FMS education meetings.
Ontario Fibromyalgia Association, 393 University Avenue - Suite 1700, Toronto ON M5G 1E6,
phone: (416) 979-7228, fax: (416) 979-8366.
Arthritis Foundation, 1330 West Peachtree
Street, Atlanta GA 30309, phone: (800) 283-7800 or (404) 872-7100 -- The Arthritis Foundation
is the only national not-for-profit organization that supports
the more than 100 types of arthritis and related conditions with
advocacy, programs, services and research.
Features: Web site, information, message board.
Massachusetts CFIDS Association, P.O. Box
690305, Quincy MA 02269-0305, phone: (617) 471-5559 -- This organization is dedicated to
supporting research, promoting medical and public education in, and advocacy and support
services for persons with chronic fatigue syndrome (CFIDS), fibromyalgia (FMS), and myalgic
Features: Web site, support groups, membership, newsletter (main focus of info is CFIDS).
The Chronic Syndrome Support Association,
801 Riverside Drive, Lumberton NC 28358-4625, e-mail: email@example.com, fax: 910-272-0904 --
The Chronic Syndrome Support Association, Inc. is a non-profit corporation founded in order to educate the
general population and health-care professionals who lack current knowledge of the research being done, and
potential research that needs to be done, on these serious, yet invisible, chronic immunological and neurological
diseases (CIND), which include Fibromyalgia Syndrome (FMS), Gulf War Syndrome (GWS), Multiple Chemical
Sensitivity Syndrome (MCS), Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS), and Myofascial
Pain Syndrome (MPS).
Features: Web site, information, newsletter, downloadable pamphlet, support group info.
Pain Outreach Association (NCPOA), 7979 Old Georgetown Road - Suite 100,
Bethesda, MD 20814-2429, phone: (301) 652-4948, fax: (301) 907-0745 -- NCPOA serves as a
clearinghouse of information on any kind of chronic pain.
Features: information, newsletter, membership, support group info.
The American Chronic Pain Association (ACPA),
P.O. Box 850, Rocklin, CA 95677, phone: (916) 632-0922, fax: (916) 632-3208 -- The American Chronic
Pain Association, Inc. is a nonprofit organization that supports self-help groups which teach positive ways to deal
with chronic pain.
Features: Web site, educational materials, newsletter, membership.
The National Headache Foundation, 428
West St. James Place - 2nd Floor, Chicago, Illinois 60614-2750, phone: 888-NHF-5552, fax: (773) 525-7357 --
The National Headache Foundation is an information center for those seeking information and support about
Features: Web site, newsletter, membership, support group info.
M.A.G.N.U.M., Inc. (Migraine Awareness Group: A National
Understanding for Migraineurs), 113 South Saint Asaph - Suite 300, Alexandria VA 22314, phone:
(703) 739-9384, fax: (703) 739-2432. MAGNUM is a non-profit corporation that was created to bring public
awareness, utilizing the electronic, print and artistic mediums, to the fact that Migraine is a true organic
Features: Web site, information, no conventional membership, donations accepted.